A newsletter for those involved in clinical trials. Published 20 times a year by Canary Ltd

Patient information

The following articles on this topic have been published in CRAdvisor (CRA) – the year, issue number and starting page number for each are listed below:

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2007  
CRA 2007; 183:6 EMEA launches EudraPharm, the European medicines database.
CRA 2007; 185:6 Guidance on consent and information sheets.
   
2006  
CRA 2006; 163:5 IRB review of clinical trial websites.
CRA 2006; 163:6 Results of survey into on-line clinical trials registries.
CRA 2006; 169:2 EC issues revised Detailed Guidance on ethics committee applications.
CRA 2006; 170:8 Pharmaceutical industry restricts trial information being made public.
CRA 2006; 171:5 IRBs violate FDA regulations.
CRA 2006; 173:5 On-line trial registries are not enough.
CRA 2006; 182:11 Consumers for Ethics in Research to disband this month.
CRA 2006; 182:11 PhRMA launches campaign to improve cancer awareness.
   
2005  
CRA 2005; 152:1 International trials database for patients and doctors in action by September 2005.
CRA 2005; 152:6 EMEA publishes final recommendations on working with Patients Organisations.
CRA 2005; 153:6 Industries' clinical trial registries.
   
2004  
CRA 2004; 126:7 Better information for patients.
CRA 2004; 132:4 Independent contact point in The Netherlands has to be physician.
CRA 2004; 134:6 Who should be the contact point for subjects enrolled in trials?
   
2003  
CRA 2003; 120:7 Consumer information sheets on the Internet.
   
2002  
CRA 2002; 85:1 Subjects do not understand study information.
CRA 2002; 89:3 Consent in pharmacogenetics.
CRA 2002; 91:1 EMEA workshop for patients' organisations.
CRA 2002; 92:1 Direct contact with patients wanted.
CRA 2002; 93:4 Patients want more direct information: EU set to change rules.
CRA 2002; 94:2 Guidance for Ethics Committee applications.
CRA 2002; 101:3 Parliament vote against direct information to patients.
   
2001  
CRA 2001; 65:1 New patient information sheet guidelines for UK.
CRA 2001;65:sup Guidelines for researchers : patient information sheet and consent form guidelines.
CRA 2001; 72:6 Clearer patient information is still required!
CRA 2001; 78:3 Patient information sheet omits safety data.
   
2000  
CRA 2000; 40:6 Do patients understand?  
CRA 2000; 49:6 Patient information sheet guidelines in Greece. 
   
1999  
CRA 1999; 20:3 US version of patient information template. 
CRA 1999; 23:1 Patient information template nears completion. 
CRA 1999; 27:1 Patient information sheet may eliminate Ethics Committee delays. 
CRA 1999; 27:1 Europe needs PINF guidelines too. 
CRA 1999; 27:3 Guidelines for researchers – patient information sheet and consent form. 
CRA 1999; 29:4 Declaration of Ottawa protects children. 
CRA 1999; 30:1 Sponsor will be responsible for independent contact point. 
CRA 1999; 31:4 Patient information sheets for children. 
CRA 1999; 32:1 Compensation rights – are patients aware? 
   
1998  
CRA 1998; 6:2 Guidance on patient information and consent forms. 
CRA 1998; 8:1 Patients will need independent trial information. 
CRA 1998; 10:1 UK releases template for standard patient information sheet. 
CRA 1998; 10:1 All risks or just some risks? 
CRA 1998; 10:sup Taking part in research. 
CRA 1998; 16:4 Progress towards a standard patient information sheet. 

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